Bibliography

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Basch E. Beyond the FDA PRO guidance: steps toward integrating meaningful patient-reported outcomes into regulatory trials and US drug labels. Value Health. 2012;15(3):401-3.
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Isojärvi J, Wood H, Lefebvre C, Glanville J. Challenges of identifying unpublished data from clinical trials: Getting the best out of clinical trials registers and other novel sources. Res Synth Methods. 2018;9(4):561-78. Abstract
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Mattioli S, Farioli A, Cooke RM, Baldasseroni A, Ruotsalainen J, Placidi D, et al. Hidden effectiveness? Results of hand-searching Italian language journals for occupational health interventions. Occup Environ Med. 2012;69(7):522-4. Abstract
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Korevaar DA, Bossuyt PM, Hooft L. Infrequent and incomplete registration of test accuracy studies: analysis of recent study reports. BMJ Open. 2014;4(1):e004596. Abstract
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Patient Involvement in Clinical Research: A guide for Patient Organisations and Patient Representatives. Soest (NL): PatientPartner; 2011. Abstract
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Reeve BB, Mitchell SA, Dueck AC, Basch E, Cella D, Reilly CM, et al. Recommended patient-reported core set of symptoms to measure in adult cancer treatment trials. J Natl Cancer Inst. 2014;106(7). Abstract
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Atsawawaranunt K, Adams CE, Roberts S. Searching for randomised controlled trials and clinical controlled trials in Thai online bibliographical biomedical databases. Health Info Libr J. 2011;28(1):68-76. Abstract
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Granados A, Borràs JM. Technology assessment in Catalonia: integrating economic appraisal. Soc Sci Med. 1994;38(12):1643-6. Abstract
Hopewell S, Clarke M, Stewart L, Tierney J. Time to publication for results of clinical trials. Cochrane Database Syst Rev. 2007;(2):MR000011. Abstract
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Golder S, Loke YK, Bland M. Unpublished data can be of value in systematic reviews of adverse effects: methodological overview. J Clin Epidemiol. 2010;63(10):1071-81. Abstract
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World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA. 2013;310(20):2191-4.