An international survey of the public engagement practices of health technology assessment organizations.

TitleAn international survey of the public engagement practices of health technology assessment organizations.
Publication TypeJournal Article
Year of Publication2013
AuthorsWhitty JA
JournalValue in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
Volume16
Issue1
Pagination155-63
Date Published2013 Jan-Feb
ISSN1524-4733
KeywordsCommunication; Consumer Participation; Cross-Sectional Studies; Data Collection; Decision Making; Health Policy; Humans; Internet; Patient Participation; Public Opinion; Social Media; Technology Assessment, Biomedical
AbstractOBJECTIVES: Many jurisdictions are moving toward greater public involvement in health technology assessment (HTA) processes. This study aims to provide a broad, cross-sectional indication of the extent and methods of public engagement in HTA, with a focus on which public are engaged, by what mechanisms, and the purpose of public engagement. METHODS: An international Web-based survey of 217 organizations involved in HTA was undertaken. Contact e-mail addresses for targeted organizations were identified from the Internet. RESULTS: Individuals from 39 (18%) of the contacted organizations completed a survey. The majority (67%) of responding HTA organizations undertake public engagement activities, predominantly involving lay representatives of organized groups (81%), and to a lesser extent individual patients/consumers (54%) or citizens/community members (54%). For organizations undertaking public engagement, mechanisms based on communication or consultation were the most common, although some organizations have used or intend to use participatory approaches, particularly the Citizens' Jury (8%) or Consensus Council (20%) methods. Respondents identified with a number of rationales and barriers for undertaking public engagement. CONCLUSIONS: This survey provides further insight into the public engagement approaches that are used by HTA organizations in practice. In particular, it suggests a limited adoption of participatory methods to date, and interest in the use of social media. Study findings require further confirmation, due to limitations related to survey response. There is considerable opportunity for further research into pragmatic, robust, and meaningful approaches to public engagement to strengthen HTA policy and decision-making frameworks. An agenda for future research evolving from the survey responses is proposed.
DOI10.1016/j.jval.2012.09.011
Alternate JournalValue Health